Dear Medical Professional,
You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin.
You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.
I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.
I will stand calm,
And in control. You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.
But remember this; That 6 year old is my baby.
That boy with the oxygen,
And the wires,
And the tubes,
Is my son.
I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …
You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin.
You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.
I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.
I will stand calm,
And in control. You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.
But remember this; That 6 year old is my baby.
That boy with the oxygen,
And the wires,
And the tubes,
Is my son.
I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …
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Fabulous post. Amazed how you can make me smile while describing such (to me) frightening and challenging medical stuff. Loving the insights into everyone elses normal that this blog hop is giving me. Thank you x
ReplyDeleteI hope that you're able to stick to plan A and go to granny's for Easter. Does the recent good patch mean that things are generally getting better? I really hope so x
ReplyDeleteYou had me nodding and "uhuh"ing all through that post. We live life the same way. I like to think it's because we're too rock and roll to be predictable!
ReplyDeleteI really hope you get to stick to the plans this Easter though, chocolate melts horribly in hospital x
Thanks Sally, glad I made you smile.
ReplyDeleteYes blue sky,things are improving at the moment. Dont want to get too excited just yet but the signs are good. :)
Yep, extremely rock and roll Renata! :D yuk-melting hospital chocolate! Hate it!
I feel the same reading this post. We never know what time we're going to leave the house if at all, and if we're lucky enough to get out we just have to go with whatever comes next. Thankyou for this post. Sarah x
ReplyDeleteI have to say all that medical stuff would scare the bejesus clean outta me! I am 'lucky' that my daughter's seizures are a hell of a lot milder than your little sweethearts. Can't imagine what you all go through everytime there is a seizure. Much respect. In the life of a special needs family plans are those things you dream about and aspire to keep. Being a special needs family means being adaptable, as much as it pisses us off!
ReplyDeleteA fab post. Thanks for sharing. xxx
Thanks Sarah - it's right, you just have to go with the flow a bit.
ReplyDeleteYes Jontybabe - we dream about doing things as a family, but it makes it all the more special then when we do actually get to do the things that so many others take for granted. And yep, it is pretty scary round here at times, but we just have to get on with it. We all have our own challenges. There are many times I read your posts and wonder how you cope with it all (although obviously the Superwoman knickers help). I guess we just keep putting one foot in font of the other and we get there in the end. xxx
My smallest has epilepsy but we are lucky that her meds control it but I know how you feel with the terrifying onslaught of a seizure.
ReplyDeleteHope it keeps getting brighter for you x