Dear Medical Professional,
You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin.
You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.
I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.
I will stand calm,
And in control. You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.
But remember this; That 6 year old is my baby.
That boy with the oxygen,
And the wires,
And the tubes,
Is my son.
I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …
You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin.
You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.
I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.
I will stand calm,
And in control. You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.
But remember this; That 6 year old is my baby.
That boy with the oxygen,
And the wires,
And the tubes,
Is my son.
I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …
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This is amazing news Emma x well done H
ReplyDeleteenjoy the smiley little H ALL day long... and mr seizure, please go away and don't come back another day x
ReplyDeleteSeizure monster - love it! Glad to hear your little man is smiling & happy. Never tried the ketogenic diet. Will be interesting to see how it goes x
ReplyDeleteI know what you mean about being nervous about being too happy about such progress... but (and I'll whisper this) that's brilliant, and long many it continue x
ReplyDeleteThank you all for your good wishes and kind words. as you probably know by now, the seizure monster did return, but I am glad that I celebrated his absence and appreciated the difference it made. Still hoping the key diet works,and of course I'll be keeping you all informed, but intend to appreciate the days the Seizure Monster isn't here rather than worry about its return! Well, I'll try anyway! :D
ReplyDelete