There are many people
who still don't know how to, or are too scared to, interact with a disabled
child. So, I thought I'd write a post to help explain what to do. Having taught
a multitude of children with varying degrees of disability over the years and
then having had my own child with profound and multiple learning difficulties,
I thought perhaps I could offer a helpful insight in how to interact with
disabled children and show it's really not that scary or difficult after all.
At first this post was
going to be all about how I understand it can be difficult to talk to Hugh as
people don't always know what to say or what he understands. I was going to
explain that children with English as a second language or very small babies
can't always understand what you're saying but that you'd talk to them
nonetheless. You wouldn't ignore them. I thought about explaining that Hugh
likes you to hold his hand while you talk to him or that you should wait a bit
longer for him to respond as it takes him a while to process things and that
whilst he won't answer with words he will answer with smiles. If you watch him
you will know he is listening.
But then I thought that
holding hands with another disabled child is actually a real no no- some
children hate to be touched. So, I wondered how to include that too.
Then I realised I was
making it all far too complicated. So, I thought I'd make it simple.
Here's my very basic
guide to communicating with a disabled child:
Regular* child
(*typical child, typically developing child, neurotypical child - use as you
feel appropriate. 'Normal' child doesn't tend to be looked on favourably
though)
Imagine a child: your son/daughter or niece/nephew or
grandaughter/grandson or your next door neighbour's kid, or little Timmy from
up the road or that girl standing behind you in the queue in the shop.
How to say hello: smile,
say 'hello (insert name if known)'
Disabled* child
(*special needs child, child with additional needs, neurodiverse child etc you
know which words NOT to use here!)
Imagine a child in a wheelchair, or a child that doesn't
make eye contact, or a child that struggles to stand still or maybe a child
that flaps his hands or a child that makes unusual noises.
How to say hello:
smile,
say 'hello (insert name if known)'
And that's it.
You see, what it boils
down to is that they're just children, regardless of whether they travel on
wheels, flap their hands, refuse to look at you or make unusual noises.
Hugh might not say
hello back, but if you give him enough time he'll smile.
Just say hello.
LOVE this post. So true, and yet it's also true that people can get a bit scared, or not sure what might offend/upset... so it helps to have the obvious spelt out! A gentle reminder is always good :)
ReplyDeleteThanks Steph. I think that's it - sometimes people are worried about doing or saying the wrong thing.
DeleteHear hear! Simple and so true. Thank you so much for linking with #spectrumsunday. We hope you join us again.
ReplyDeleteThank you
DeleteYes, yes, yes! I admit that, even though I have multiple disabilities myself, I felt awkward at first interacting with my fellow clients with profound learning difficulties at the day center. However, I feel much more at ease in their company since just overcoming my awkwardness and saying "hello". In fact, once it became clear that I too would benefit from sensory activities (that are normally done with PMLD people) rather than industrial activities, my staff asked if I could meet the most profoundly disabled person in the sensory group. The reason wasn't her disability but the fact that we enjoy the same activities.
ReplyDeletePrior to having my son, I too would have found it intimidating. Your point reminds us that it's important to notice the similarities between us all rather than the differences. Thank you.
DeleteThanks
ReplyDelete