Dear Medical Professional, You will ask about his medical history, And I will repeat the story I have told 100 times or more, The details fine tuned to the essentials I know you need: He was born full term, He has a 7 year old brother who is fit and well, He is allergic to penicillin. You will ask me what happened, And I will answer: He is 6 years old. He wasn't breathing for 7 minutes. I gave him mouth to mouth. I will hand over a careful typed piece of A4 paper. It will tell you his hospital number, The things he is allergic to, A list of medications and doses. You will take it and smile. You'll tell me I make your job easier. I will stand calm, And in control. You see my demeanour, my hospital bags packed and ready, And you say, You've done this before. I'll nod and say many times. But remember this; That 6 year old is my baby. That boy with the oxygen, And the wires, And the tubes, Is my son. I watched him turn bl...
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My heart is breaking for you, but please try not to focus on the implications - if he is happy and well-cared for there, then that is actually great. And your experiences have had me considering approaching Ireland's only children's hospice to see whether they would take Smiley since I am not that happy with her existing respite. And it is hard to put your child in respite at first but you do need it, I've had no break at all now for 5 weeks and I am completely exhausted. Still 2 weeks until school starts back xxx
ReplyDeleteThank you Blue Sky. Yes, the main thing is that he is happy and well cared for and that I trust them. 5 weeks without a break is hard - I'm not surprised your exhausted. Might well be worth looking at the hospice there too, especially if Smiley's current respite isn't ideal. I'm surprised there is only one children's hospice in the whole of Ireland though - that's quite shocking!
ReplyDeleteWelling up here. Your description of doing normal things then the realisation hitting you like a truck struck such a chord. Hugs xxx
ReplyDeleteThank you for the hugs Jane - always appreciated. xxx
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