Dear Doctor

Dear Medical Professional,

You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin. 

You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.

I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.

I will stand calm,
And in control.  You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.

But remember this; That 6 year old is my baby.

That boy with the oxygen,
And the wires,
And the tubes,
Is my son.

I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …


Hugh making his TV debut on The National Lottery, raising awareness for Swan UK and The National Lottery Good Causes.

Born this way - raising awareness about undiagnosed genetic conditions.
There's a cute pic of H in there too!  :D

Special Siblings - A video all about how special the siblings of children with special needs are.  
Look closely and you'll spot my two.

We are Family a video from Swan UK about the amazing work  they do supporting families with undiagnosed children like ours.

Welcome to Holland by Emily Perl Kingsley.