Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

Meet The Family


"Mmmm, must be wine-o'clock again!"

Me: I'm Little Mama Murphy- short-arsed, bespectacled, with hair that has varied through the years from long, curly and red to short straight and blonde and anything in-between (including a disastrous pink accident and a dodgy black ‘goth’ look!). Rather fond of a glass of wine or three.

Married to: Mr. M - sturdy, dependable and tall (I come up to just about his shoulders).

Mum to (or Mama as Sean used to call me, hence the name): 
Sean - a cheeky, chatterbox and a wonderful kind and caring big brother to... 
Little Hugh- my beautiful smiley boy with no end of complicated medical difficulties, keeping all the doctors on their toes, turning his dad and me grey with worry and the reason I started this blog.

Mostly this is me, rambling about family life with a ‘medical mystery’, an undiagnosed child, stressing about coming to terms with that (or not as the case may be) and pretty much pouring out all the thoughts and feelings that are bubbling around in my head.  I’m basically using the Internet as free counselling! So far it seems to be working as I haven’t had a nervous breakdown. Yet!

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