The life I never expected

Way back... Way back when... Way back when I didn't know how disabled Hugh was or would be... Way back when I didn't realise how destructive his seizures were... Way back when I thought the doctors could fix things... I thought,  I thought that once we'd sorted the epilepsy everything would be better, I thought that once we'd sorted the epilepsy I'd have to struggle to come to terms with having a child that needed to go to special school.
I didn't expect to have to come to terms with having a child that would be unlikely to live past his teenage years.
I didn't expect to come to terms with having a son that hardly knew I existed.
I didn't expect that, even once the terrible times had past, the devastating consequences would remain.
Hugh's epilepsy has robbed him of a future. Hugh's epilepsy has robbed us of the child he might have been.
His really bad seizures are less often than they used to be, And for that I am grateful, But they cast a long shadow, And I ne…

Meet The Family


"Mmmm, must be wine-o'clock again!"

Me: I'm Little Mama Murphy- short-arsed, bespectacled, with hair that has varied through the years from long, curly and red to short straight and blonde and anything in-between (including a disastrous pink accident and a dodgy black ‘goth’ look!). Rather fond of a glass of wine or three.

Married to: Mr. M - sturdy, dependable and tall (I come up to just about his shoulders).

Mum to (or Mama as Sean used to call me, hence the name): 
Sean - a cheeky, chatterbox and a wonderful kind and caring big brother to... 
Little Hugh- my beautiful smiley boy with no end of complicated medical difficulties, keeping all the doctors on their toes, turning his dad and me grey with worry and the reason I started this blog.

Mostly this is me, rambling about family life with a ‘medical mystery’, an undiagnosed child, stressing about coming to terms with that (or not as the case may be) and pretty much pouring out all the thoughts and feelings that are bubbling around in my head.  I’m basically using the Internet as free counselling! So far it seems to be working as I haven’t had a nervous breakdown. Yet!

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