tag:blogger.com,1999:blog-3268441232099307652.comments2023-11-04T09:19:11.719+00:00Little Mama MurphyLittle Mama Murphyhttp://www.blogger.com/profile/02807052833900011141noreply@blogger.comBlogger624125tag:blogger.com,1999:blog-3268441232099307652.post-30575822007827448952020-03-21T06:34:13.258+00:002020-03-21T06:34:13.258+00:00I hope he will be seizure free, my daughter also h...I hope he will be seizure free, my daughter also has similar story and now we are thinking of weaning from keto because it was not successful for her, just it added more suffering to the previous suffering of 3 antiepleptic drugsAnonymoushttps://www.blogger.com/profile/17651691457989038143noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-39893978170630610692019-11-08T16:05:14.462+00:002019-11-08T16:05:14.462+00:00ouching tribute to your boy and the hospice. We ar...ouching tribute to your boy and the hospice. We are also in the hospice programme although I believe at this rate Amélie will out see us bothJames Pennhttps://www.blogger.com/profile/10796625512922776686noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-45462672532086448072018-01-23T12:36:35.792+00:002018-01-23T12:36:35.792+00:00Wow, you've had a tough journey, I'm amaze...Wow, you've had a tough journey, I'm amazed that they hadn't found a true diagnosis after all these years.I hope the information they give you helps set some plans in place that are good for you and Hugh. Such a happy, sweet photo! #The MMLinkyLiberty Henwickhttps://libertyonthelighterside.comnoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-22830661712521046282018-01-22T23:56:47.735+00:002018-01-22T23:56:47.735+00:00Really powerful post. I can't even imagine the...Really powerful post. I can't even imagine the rollercoaster of emotions over the last few years or today. I wish you all the best and do reach out for support because that is a real sign of strength. #TheMMLinkykateonthinicehttps://www.blogger.com/profile/08506288402799764435noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-29131081620688575152017-11-28T04:30:19.851+00:002017-11-28T04:30:19.851+00:00The vns machine works well I have had it for 3 yea...The vns machine works well I have had it for 3 years now and I'm very impressed with it, I haven't had a seziure in 3 years I finally have a licence and I love my life was told I couldn't have children because the medications I was on till I became a "test dummy" for the vns and I'm so happy I chose to go through with it I'm it is great and I would reccomend anybody that has seziures as bad as I sid to get the machine asapbecause it is so great Anonymoushttps://www.blogger.com/profile/07054024458258261592noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-73733345480505278752017-11-26T16:06:52.565+00:002017-11-26T16:06:52.565+00:00this reminds me so much of my children my special ...this reminds me so much of my children my special needs hero is 5 and her siblings are 3 and 1 and I see so much of your story in my 3 year old already it breaks my heart because its not something you want your child to just have to accept, she happily plays in the hospital playroom as if she is at home and plays drs all the time and is starting to take an interest in how my daughter is fed i try to keep it as 'normal' as i can but what is normal? thank you for sharing x<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-87599241420742441122017-11-16T14:49:33.843+00:002017-11-16T14:49:33.843+00:00thankuthankuVickie J. Pittmannoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-49655674929037611732017-11-08T10:53:57.915+00:002017-11-08T10:53:57.915+00:00Thank you, he really is a star.Thank you, he really is a star.Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-2890670928410309472017-11-08T10:53:34.401+00:002017-11-08T10:53:34.401+00:00Thanks VailaThanks VailaLittle Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-6513062953736895432017-11-01T23:10:14.580+00:002017-11-01T23:10:14.580+00:00Aw that's brilliant to know it's practical...Aw that's brilliant to know it's practical with the hoist! So glad Hugh is getting to enjoy his bath again!<br />Thank you for sharing with #AccessLinkyInclusive Homehttp://www.theinclusivehome.co.uknoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-9747747447036014552017-10-30T10:15:39.991+00:002017-10-30T10:15:39.991+00:00What an amazing boy he is, and big brother - no wo...What an amazing boy he is, and big brother - no wonder you're proud! <3 Marylinhttps://softthistle.netnoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-21879173152052498022017-10-27T09:14:25.810+01:002017-10-27T09:14:25.810+01:00Fingers crossed. Apparently lots of people have ex...Fingers crossed. Apparently lots of people have expressed this wish so hopefully they’ll make a larger model. We won’t be in this for very long- not the way Hugh is growing! Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-25678499618151949142017-10-27T09:13:22.736+01:002017-10-27T09:13:22.736+01:00Yes, they’re really good. And reasonably priced (c...Yes, they’re really good. And reasonably priced (comparitively to usual SN prices) Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-45696233913037184492017-10-27T09:12:31.436+01:002017-10-27T09:12:31.436+01:00Thank you. It’s fab.Thank you. It’s fab.Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-52934759152320467592017-10-27T09:11:44.516+01:002017-10-27T09:11:44.516+01:00Thank you, that’s really kind. Thank you, that’s really kind. Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-65439510308789355362017-10-27T09:11:23.044+01:002017-10-27T09:11:23.044+01:00Thank you Kate. And I’m sure you couldn’t say the ...Thank you Kate. And I’m sure you couldn’t say the wrong thing. Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-39936386107887065222017-10-27T09:10:50.446+01:002017-10-27T09:10:50.446+01:00Yes- I do feel torn but I am very proud of how the...Yes- I do feel torn but I am very proud of how they cope. Thank you Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-32836397828018561622017-10-27T09:10:02.595+01:002017-10-27T09:10:02.595+01:00Thank you Thank you Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-37450356483148881342017-10-27T09:09:49.361+01:002017-10-27T09:09:49.361+01:00Thank you Thank you Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-31893799774029537122017-10-27T09:09:38.136+01:002017-10-27T09:09:38.136+01:00Thank you. Those tube fed toys are brilliant aren’...Thank you. Those tube fed toys are brilliant aren’t they? And yes, the siblings do learn to be so caring and understanding. Little Mama Murphyhttps://www.blogger.com/profile/02807052833900011141noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-35191629578565197182017-10-25T22:48:39.616+01:002017-10-25T22:48:39.616+01:00What a fabulous post, you and your boys sound amaz...What a fabulous post, you and your boys sound amazing xxA Wheelie Great Adventurehttps://awheeliegreatadventure.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-86331879988690555402017-10-25T19:11:30.274+01:002017-10-25T19:11:30.274+01:00Such a poignant post. I don't want to say the ...Such a poignant post. I don't want to say the wrong words so I will leave it at that before some better words emerge. Your love shines out for both of themkateonthinicehttps://www.blogger.com/profile/08506288402799764435noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-35347601927312847182017-10-25T15:02:09.407+01:002017-10-25T15:02:09.407+01:00What an amazing post. You must be a bit torn, but...What an amazing post. You must be a bit torn, but extremely proud of your family. xxx #smallstepsAAAnn Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-54611473368548382632017-10-25T13:14:04.263+01:002017-10-25T13:14:04.263+01:00An amazing brother for an amazing brother.
An amazing brother for an amazing brother.<br />John Wallacehttp://www.nlrp12.comnoreply@blogger.comtag:blogger.com,1999:blog-3268441232099307652.post-22726961070108112582017-10-24T22:46:28.918+01:002017-10-24T22:46:28.918+01:00Wow! Sean really is a Super Brother to Hugh. You h...Wow! Sean really is a Super Brother to Hugh. You have every right to be so proud xxDonnahttps://www.blogger.com/profile/00806293497630739460noreply@blogger.com