The life I never expected

Way back... Way back when... Way back when I didn't know how disabled Hugh was or would be... Way back when I didn't realise how destructive his seizures were... Way back when I thought the doctors could fix things... I thought,  I thought that once we'd sorted the epilepsy everything would be better, I thought that once we'd sorted the epilepsy I'd have to struggle to come to terms with having a child that needed to go to special school.
I didn't expect to have to come to terms with having a child that would be unlikely to live past his teenage years.
I didn't expect to come to terms with having a son that hardly knew I existed.
I didn't expect that, even once the terrible times had past, the devastating consequences would remain.
Hugh's epilepsy has robbed him of a future. Hugh's epilepsy has robbed us of the child he might have been.
His really bad seizures are less often than they used to be, And for that I am grateful, But they cast a long shadow, And I ne…

I'd Move Heaven And Earth To Help You

I would move heaven and earth for you,
If I could.

I'd walk a thousand miles for you,
If it would help.

I'd pray to God,
To any god,
To every god,
If I thought it would make a difference. 

I'd go to hell and back for you.


I've been to hell and back with you.

I've begged God to save you,
To help me,
To stop this.

I've walked miles of hospital corridors,
Paced the house in the early hours,
Ran until I couldn't breathe.
 
For you, 
With you, 
Because of you.


And yet;
Here we are...



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