Having a child with special needs affects the whole family.

Having a child with additional needs changes a family.  I think you become more insular as no one can truly understand how much your life has changed.  We are not the same people, same couple, same family as we were before our special boy, Hugh, was born.  Our priorities have changed.  Our needs have changed.  Hell, even our political views have changed.  It’s not all bad though.  Yes, I am beginning to feel isolated from even my closest friends, but in turn, we have grown stronger as a couple, talk more openly and rely on each other more.

My overriding concern has always been though, the effect having a brother with special needs will have on my eldest son, Sean.  He is nearly three and I worry almost as much about his future as I do about his younger brother’s. Will he get bullied for having a brother that is so ‘different’?  Will he feel neglected because his brother demands so much care and attention?  Will he be embarrassed by a brother that can’t walk or talk?  Will he be jealous…

I'd Move Heaven And Earth To Help You

I would move heaven and earth for you,
If I could.

I'd walk a thousand miles for you,
If it would help.

I'd pray to God,
To any god,
To every god,
If I thought it would make a difference. 

I'd go to hell and back for you.

I've been to hell and back with you.

I've begged God to save you,
To help me,
To stop this.

I've walked miles of hospital corridors,
Paced the house in the early hours,
Ran until I couldn't breathe.
For you, 
With you, 
Because of you.

And yet;
Here we are...