Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

I'd Move Heaven And Earth To Help You

I would move heaven and earth for you,
If I could.

I'd walk a thousand miles for you,
If it would help.

I'd pray to God,
To any god,
To every god,
If I thought it would make a difference. 

I'd go to hell and back for you.

I've been to hell and back with you.

I've begged God to save you,
To help me,
To stop this.

I've walked miles of hospital corridors,
Paced the house in the early hours,
Ran until I couldn't breathe.
For you, 
With you, 
Because of you.

And yet;
Here we are...