Dear Doctor

Dear Medical Professional,

You will ask about his medical history,
And I will repeat the story I have told 100 times or more,
The details fine tuned to the essentials I know you need:
He was born full term,
He has a 7 year old brother who is fit and well,
He is allergic to penicillin. 

You will ask me what happened,
And I will answer:
He is 6 years old.
He wasn't breathing for 7 minutes.
I gave him mouth to mouth.

I will hand over a careful typed piece of A4 paper.
It will tell you his hospital number,
The things he is allergic to,
A list of medications and doses.
You will take it and smile.
You'll tell me I make your job easier.

I will stand calm,
And in control.  You see my demeanour,
my hospital bags packed and ready,
And you say,
You've done this before.
I'll nod and say many times.

But remember this; That 6 year old is my baby.

That boy with the oxygen,
And the wires,
And the tubes,
Is my son.

I watched him turn blue. The first time,
The fifth time,
The hundred and fifty fifth time...
It was still …

Happy 6th Birthday Happy Little Hugh


From here: 



Through 6 years of sleepless nights,
Through 6 years of God knows how many ambulance rides,
Through 6 years of the kind of worry I could never have dreamed of.

Through 6 years of hospital admissions,
Through 6 years of tubes and monitors and alarms
Through 6 years of tears and terror and fear.

There were 6 years of laughter
There were 6 years of joy,
There were 6 years of happiness,
And 6 years of love.


For every time I have cried, I have laughed a thousand times more.
For every second of fear I felt, you have given me an hour of joy.


Son, 
I love you.
All the way to the moon and the stars and all the way back again.

To here: 


     Happy 6th birthday my crazy haired, morning hating, pink balloon loving, Happy Little Hugh xxx

Comments

  1. So lovely and so true for my daughter too. I hope that Hugh had a very happy birthday xxx

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  2. My daughter too has genetic autosomal recessive microcephaly, hypotonia and very severe intractible epilepsy, she has never walked and never talked, she wears nappies 24/7, she has a gastrostomy button and a Nissen Fundoplication, she is 23 years old now, just starting out on the ketogenic diet journey....all will be given by gastrostomy 100%....KetoCal ready made feeds. I do hope Hugh enjoyed his 6th Birthday. Lots of Love. XXX

    ReplyDelete

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