|We're tweeting our MP - see how easy it is?|
All Party Parliamentary Groups (APPGs) are informal, cross-party, interest groups of MPs and Peers interested in a particular issue. Cross party means they have politicians from all the different political groups involved and so they are a great way to make sure everyone in parliament knows about the issues they cover.
APPGs are not funded by parliament and do not have any power to make laws but these groups can act as pressure groups for specific causes helping to keep the government, the opposition and MPs informed of parliamentary, expert and public opinion.
So please for Hugh, and for all the children like him and families like ours that are affected by rare, undiagnosed and genetic conditions, please contact your MPs and ask them to join the APPG.
And Jess... if you'd like to meet Hugh and I and discuss how being undiagnosed has impacted our lives, we'd be more than happy to.
|I'm not just rare ... I'm one of a kind #Hughnique|
Want to find out more and use a template letter to contact your MP? Click here: SWAN UK APPG Q&A
|All ready for another school year.|
"What are you looking so happy about?"