Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

When Words Aren't Enough

Hugh’s fundraiser was on Saturday night.  I’m still not sure how much was raised; it was a lot though – an awful lot.  I am completely astounded by people’s kindness and generosity.  In a time of austerity and recession, so many people pulled together to make a difference for Hugh.  It felt like being on an episode of DIY SOS.  All these people, some friends, some strangers, some people I’ve not seen for years – all there to support my amazing little man.  I want to thank everyone who played their part.  But how?  Sometimes words just aren’t enough.

********* 


Thank you.

It’s not big enough somehow.

Not even when I type it like this: 

Thank you.

It’s just not enough. 

It doesn’t convey the depth of emotion I feel,
Or the overwhelming gratitude,
Or how humbled I am.

It doesn’t express how moved I am,
How my heart could burst,
How truly loved and blessed I feel.

And yet ... it’s all I can say. 

There isn’t a word or a sentence or a phrase that can express how I feel.

So ...

To all of my wonderful friends,
And to my family.

To everyone who donated the absolutely amazing auction and raffle prizes,
And to all who bid on them and bought raffle tickets.

To the band and the DJ
And the doormen and the barstaff.

To the random photographer
Who offered his services for free at the last minute after a chance meeting with my aunt.

To the people who couldn’t make it
But donated anyway.

To the people who travelled many many miles just to be there
And to those who came despite circumstances conspiring against them.

To everyone who sent messages
Of support, positivity and encouragement.

To the lady who left a surprise bouquet of flowers
Just for me.

To the people who went above and beyond anything I could ever have possibly imagined
To create a truly wonderful, magical, amazing night ...

Thank you.

Just thank you.

Sometimes you don't need words.



Comments

  1. Aww - that's lovely. People can really surprise you sometimes can't they x very touching to read xx

    ReplyDelete

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