Having a child with special needs affects the whole family.

Having a child with additional needs changes a family.  I think you become more insular as no one can truly understand how much your life has changed.  We are not the same people, same couple, same family as we were before our special boy, Hugh, was born.  Our priorities have changed.  Our needs have changed.  Hell, even our political views have changed.  It’s not all bad though.  Yes, I am beginning to feel isolated from even my closest friends, but in turn, we have grown stronger as a couple, talk more openly and rely on each other more.



My overriding concern has always been though, the effect having a brother with special needs will have on my eldest son, Sean.  He is nearly three and I worry almost as much about his future as I do about his younger brother’s. Will he get bullied for having a brother that is so ‘different’?  Will he feel neglected because his brother demands so much care and attention?  Will he be embarrassed by a brother that can’t walk or talk?  Will he be jealous…

When Words Aren't Enough

Hugh’s fundraiser was on Saturday night.  I’m still not sure how much was raised; it was a lot though – an awful lot.  I am completely astounded by people’s kindness and generosity.  In a time of austerity and recession, so many people pulled together to make a difference for Hugh.  It felt like being on an episode of DIY SOS.  All these people, some friends, some strangers, some people I’ve not seen for years – all there to support my amazing little man.  I want to thank everyone who played their part.  But how?  Sometimes words just aren’t enough.

********* 


Thank you.

It’s not big enough somehow.

Not even when I type it like this: 

Thank you.

It’s just not enough. 

It doesn’t convey the depth of emotion I feel,
Or the overwhelming gratitude,
Or how humbled I am.

It doesn’t express how moved I am,
How my heart could burst,
How truly loved and blessed I feel.

And yet ... it’s all I can say. 

There isn’t a word or a sentence or a phrase that can express how I feel.

So ...

To all of my wonderful friends,
And to my family.

To everyone who donated the absolutely amazing auction and raffle prizes,
And to all who bid on them and bought raffle tickets.

To the band and the DJ
And the doormen and the barstaff.

To the random photographer
Who offered his services for free at the last minute after a chance meeting with my aunt.

To the people who couldn’t make it
But donated anyway.

To the people who travelled many many miles just to be there
And to those who came despite circumstances conspiring against them.

To everyone who sent messages
Of support, positivity and encouragement.

To the lady who left a surprise bouquet of flowers
Just for me.

To the people who went above and beyond anything I could ever have possibly imagined
To create a truly wonderful, magical, amazing night ...

Thank you.

Just thank you.

Sometimes you don't need words.



Comments

  1. Aww - that's lovely. People can really surprise you sometimes can't they x very touching to read xx

    ReplyDelete

Post a Comment

Thanks for taking the time to read and comment.