The life I never expected

Way back... Way back when... Way back when I didn't know how disabled Hugh was or would be... Way back when I didn't realise how destructive his seizures were... Way back when I thought the doctors could fix things... I thought,  I thought that once we'd sorted the epilepsy everything would be better, I thought that once we'd sorted the epilepsy I'd have to struggle to come to terms with having a child that needed to go to special school.
I didn't expect to have to come to terms with having a child that would be unlikely to live past his teenage years.
I didn't expect to come to terms with having a son that hardly knew I existed.
I didn't expect that, even once the terrible times had past, the devastating consequences would remain.
Hugh's epilepsy has robbed him of a future. Hugh's epilepsy has robbed us of the child he might have been.
His really bad seizures are less often than they used to be, And for that I am grateful, But they cast a long shadow, And I ne…

God Gave Me A Special Child

I am strong.

Because my son has taught me to keep fighting
And never give up,
Even when it seems all hope is lost.


I am courageous.

Because my son has taught me to trust my instincts, 
To fight for what I believe in,
And not be too intimidated to make my voice heard.


I am humble.

Because my son has taught me to ask for help when I can't do it alone,
To accept the things I can not change
And to put the past behind me.


I am patient.

Because my son has taught me that some things are worth waiting for.
Like that first giggle,
Or a smile.


I am thankful.

Because my son has taught me to make the most of every opportunity,
To appreciate every day,
As if it were our last.


I am blessed.

Because my son has taught me to see beauty in the world around me,
And that happiness, family and love
Are all that are truly important.


God didn't give me a child with special needs because of the gifts I had.

He gave me a child with special needs to teach me the skills I lacked.


Comments

  1. Well said emma. X

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  2. This is lovely, it made me very emotional, it must have touched a nerve :0) It is very true x

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  3. Wow. I could have written this myself. my son too. thanks beautiful.

    ReplyDelete

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