Having a child with special needs affects the whole family.

Having a child with additional needs changes a family.  I think you become more insular as no one can truly understand how much your life has changed.  We are not the same people, same couple, same family as we were before our special boy, Hugh, was born.  Our priorities have changed.  Our needs have changed.  Hell, even our political views have changed.  It’s not all bad though.  Yes, I am beginning to feel isolated from even my closest friends, but in turn, we have grown stronger as a couple, talk more openly and rely on each other more.



My overriding concern has always been though, the effect having a brother with special needs will have on my eldest son, Sean.  He is nearly three and I worry almost as much about his future as I do about his younger brother’s. Will he get bullied for having a brother that is so ‘different’?  Will he feel neglected because his brother demands so much care and attention?  Will he be embarrassed by a brother that can’t walk or talk?  Will he be jealous…

Super Brothers


Me and my brother are Super Heroes!


He wears a special Super Hero suit under his clothes, just like Superman.

I don’t need one.  But sometimes, when it’s cold, I wear a vest.

He has a special tube that goes straight into his tummy to give him food and Super Hero Strength.

I eat my dinner to make me Super Strong.  My favourite food is burger and chips.




He has a cool chair with wheels on so he can whizz around and I can run Super Fast.  Together we fight the baddies.



He doesn’t need to talk.  He uses the power of his mind to tell you what he’s thinking.  I can understand him the best though, because he’s my brother.

He tells me jokes that no-one else can hear and I tell him funny stories.



At night, when everyone is sleeping, he flies me all the way to the moon and we watch the aliens playing and catch shooting stars.  Then he flies me all the way back home again.



My brother is the best Super Hero in the whole wide world.

He’s the best brother too.

I love him all the way up to the moon and the stars and all the way back down again.


Cheeky (age 4) and I wrote this post together for Children's Hospice Week (26th April - 3rd May 2013).  Children's Hospice Week is the UK's only awareness and fundraising week for children with life-limiting conditions and the services, like children's hospices, that support them. This year, the focus is on siblings.  You can find out more by visiting the Together for Short Lives Website.



Comments

  1. cheeky loves his brother! it's obvious. I think that our little ones are very lucky to have superhero siblings who love them to the stars and back. this is a great post, together they can take on anything and win xx

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  2. I love your post and the pictures bring your words to life. Well done.

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  3. Thank you Petra.

    They are indeed very lucky to have superhero siblings h0peful mummy. I'm glad it comes across how much cheeky loves H- he really does adore him.

    Thanks bright side of life. I'm not much of an artist to be honest but wanted to try something a bit different.

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  4. I love this it's fab xx

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  5. Aw, how lovely and what a wonderful little book it would make for ALL children to read. xx

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  6. Thanks Michelle. I was trying to make it into a little book for Cheeky to keep but haven't found an online publishing tool I'm happy with yet. Lots of photo books but the text ones seem to be aimed at larger books.

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