Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

A Very Special Twelve Days Of Christmas


Here’s one I pinched earlier ...I have tried but have been unable to find the original author.  It seems to pop up on quite a few blogs and facebook pages.  Anyway, hope you like it as much as I do ...


On the first day of Christmas, the good Lord gave to me: a child with special needs.

On the second day of Christmas, the good Lord gave to me: a heart full of love for my child with special needs.


On the third day of Christmas, the good Lord gave to me: an ache in my heart and a heart full of love for my child with special needs.

On the fourth day of Christmas, the good Lord gave to me: a tear in my eyes, an ache in my heart and a heart full of love for my child with special needs.


On the fifth day of Christmas, the good Lord gave to me: an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the sixth day of Christmas, the good Lord gave to me: a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the seventh day of Christmas, the good Lord gave to me: a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the eighth day of Christmas, the good Lord gave to me: supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the ninth day of Christmas, the good Lord gave to me: remarkable doctors & therapists, supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in heart and my heart full of love for my child with a special needs.


On the tenth day of Christmas, the good Lord gave to me: an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humour  a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the eleventh day of Christmas, the good Lord gave to me: a sense of pride and courage, an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

On the twelfth day of Christmas, the good Lord said to me: Reach out and share your sense of pride and courage, your appreciation of small accomplishments, your remarkable doctors & therapists, your supportive friends, your sense of humour, your ray of hope, your unexpected strength for the tear in your eyes and the ache in your heart and your heart full of love for your child with special needs.

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