Having a child with special needs affects the whole family.

Having a child with additional needs changes a family.  I think you become more insular as no one can truly understand how much your life has changed.  We are not the same people, same couple, same family as we were before our special boy, Hugh, was born.  Our priorities have changed.  Our needs have changed.  Hell, even our political views have changed.  It’s not all bad though.  Yes, I am beginning to feel isolated from even my closest friends, but in turn, we have grown stronger as a couple, talk more openly and rely on each other more.



My overriding concern has always been though, the effect having a brother with special needs will have on my eldest son, Sean.  He is nearly three and I worry almost as much about his future as I do about his younger brother’s. Will he get bullied for having a brother that is so ‘different’?  Will he feel neglected because his brother demands so much care and attention?  Will he be embarrassed by a brother that can’t walk or talk?  Will he be jealous…

A Very Special Twelve Days Of Christmas


Here’s one I pinched earlier ...I have tried but have been unable to find the original author.  It seems to pop up on quite a few blogs and facebook pages.  Anyway, hope you like it as much as I do ...


On the first day of Christmas, the good Lord gave to me: a child with special needs.

On the second day of Christmas, the good Lord gave to me: a heart full of love for my child with special needs.


On the third day of Christmas, the good Lord gave to me: an ache in my heart and a heart full of love for my child with special needs.

On the fourth day of Christmas, the good Lord gave to me: a tear in my eyes, an ache in my heart and a heart full of love for my child with special needs.


On the fifth day of Christmas, the good Lord gave to me: an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the sixth day of Christmas, the good Lord gave to me: a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the seventh day of Christmas, the good Lord gave to me: a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the eighth day of Christmas, the good Lord gave to me: supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the ninth day of Christmas, the good Lord gave to me: remarkable doctors & therapists, supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in heart and my heart full of love for my child with a special needs.


On the tenth day of Christmas, the good Lord gave to me: an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humour  a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.


On the eleventh day of Christmas, the good Lord gave to me: a sense of pride and courage, an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humour, a ray of hope, an unexpected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

On the twelfth day of Christmas, the good Lord said to me: Reach out and share your sense of pride and courage, your appreciation of small accomplishments, your remarkable doctors & therapists, your supportive friends, your sense of humour, your ray of hope, your unexpected strength for the tear in your eyes and the ache in your heart and your heart full of love for your child with special needs.

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