Having a child with special needs affects the whole family.

Having a child with additional needs changes a family.  I think you become more insular as no one can truly understand how much your life has changed.  We are not the same people, same couple, same family as we were before our special boy, Hugh, was born.  Our priorities have changed.  Our needs have changed.  Hell, even our political views have changed.  It’s not all bad though.  Yes, I am beginning to feel isolated from even my closest friends, but in turn, we have grown stronger as a couple, talk more openly and rely on each other more.



My overriding concern has always been though, the effect having a brother with special needs will have on my eldest son, Sean.  He is nearly three and I worry almost as much about his future as I do about his younger brother’s. Will he get bullied for having a brother that is so ‘different’?  Will he feel neglected because his brother demands so much care and attention?  Will he be embarrassed by a brother that can’t walk or talk?  Will he be jealous…

Ketogenic Diet: Week 5 - Can Daddy cope alone?



Week Five: Thursday 22nd – Wednesday 28th March (days 29 - 35)

#Ketogenicdiet tweets for the week:

Thursday 22nd March #ketogenicdiet week 5 starts here. Yesterday we had 2 readings above 3. Shh! Just about to check them now again to see if that was a fluke.
#ketogenicdiet #epilepsy oh well. Day 29 and still not ketotic. Will have to reduce maxijul again.


xxxxx

Daddy had to cope alone this week, well for a few days anyway, as I took Cheeky away on holiday.  Just a short update then – Mr. M wasn’t tweeting or blogging on my behalf while we were away!

No major problems – Daddy managed to make up all the feeds quite successfully, requiring only one phone call to check the number of scoops of maxijul he needed (even though I had written it down).  He managed to deal with the dieticians and take H to his appointments too.  Well done Mr.M!  I never doubted you could do it, ha ha.

H’s ketones peaked too and we seem to have found the right balance of maxijul (4scoops in his feeds if you’re interested).  Will see if they continue to remain high.

xxxxx

That’s all for this week.  Have a good week.



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