Looking for Patterns

When Hugh was little we tried to work out why his seizures were happening, what was causing them. Sometimes we attributed them to illness- an underlying chest infection, brewing chicken pox, sickness and diarrhoea. Other times it seemed to be pain related- teething seemed to bring them on. But often, and increasingly so as he got older, there was no obvious trigger, nothing we could pinpoint that was the cause. They just seemed to happen. So instead we looked for patterns, attempting to find order, to give ourselves a sense of control over something which we really had no control over at all.
Recently our pattern appeared to be about every three months Hugh would have a big-not-breathing seizure. He'd invariably be hospitalised and more often than not require IV drugs to stop the pattern. We'd have 3 bad days- he'd need resuscitating anywhere between 6 and 20 times over that 3 day period. He'd be out of sorts for a couple of days, extra sleepy or with lots of other type…

Normal? Isn't that just another word for boring?


Just a short and sweet one this week - yes, I know that's unusual for me!  

So as part of Renata's #definenormal bloghop, I'm thinking again about normal.  I considered sharing more insights into my not so normal life with Little H and his myriad of medical mysteries, but since he's unwell at the moment and I have a strict half-hourly schedule of saline nebulisers, oxygen giving, chest-physio-ing, administering medication of one type or another, suctioning, temperature checking, NG feeding, there just isn't the time.  So short and sweet it is.

Normal I have decided is actually just another way of saying boring.  If I have nothing interesting to say about somewhere or someone, I'd say it's/they're 'normal' or 'alright' or 'fine' (imagine these words said with a shrug and you'll get the gist).  Basically - dull, forgettable, not particularly interesting; not even interesting enough to actively like or dislike.  It's/they're not lively, entertaining, funny, clever, artistic, talkative, quiet ...[insert any adjective at all here pretty much]... they're not anything! 

So I'm not really sure I want me or my family to be normal anyway.




SO THERE!!!





This post is written as part of the bloghop #definenormal.  Pop along to Just bring the chocolate to find out more, join in and get a funky badge too, just like the one on the right!  :D