Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

Normal? Isn't that just another word for boring?


Just a short and sweet one this week - yes, I know that's unusual for me!  

So as part of Renata's #definenormal bloghop, I'm thinking again about normal.  I considered sharing more insights into my not so normal life with Little H and his myriad of medical mysteries, but since he's unwell at the moment and I have a strict half-hourly schedule of saline nebulisers, oxygen giving, chest-physio-ing, administering medication of one type or another, suctioning, temperature checking, NG feeding, there just isn't the time.  So short and sweet it is.

Normal I have decided is actually just another way of saying boring.  If I have nothing interesting to say about somewhere or someone, I'd say it's/they're 'normal' or 'alright' or 'fine' (imagine these words said with a shrug and you'll get the gist).  Basically - dull, forgettable, not particularly interesting; not even interesting enough to actively like or dislike.  It's/they're not lively, entertaining, funny, clever, artistic, talkative, quiet ...[insert any adjective at all here pretty much]... they're not anything! 

So I'm not really sure I want me or my family to be normal anyway.




SO THERE!!!





This post is written as part of the bloghop #definenormal.  Pop along to Just bring the chocolate to find out more, join in and get a funky badge too, just like the one on the right!  :D 


Comments

  1. Blogger hates me, I've been trying to leave a comment for ages!

    This weeks entry is short, yes (but very impressive considering all the stuff going on at home), but oooooooh so true. The world would be a dull place indeed if we were all the same. Love the pic of the baby :-)

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  2. morning!
    i think that when it comes down to it, no one is normal or would want to admit to being normal. no one thinks of themselves as being boring or lifeless or forgetable - apart from in a position of despair perhaps.
    normal normality just doesn't exist full stop...
    who wants to be normal anyway?
    sometimes, actually i think that i do...
    hope all is ok with you - hourly regime sounds like hard work - hope that you are looking after yourself
    x

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  3. So True. I'd hate to be normal, average, ordinary... Dull, dull DULL! Thanks for sharing :) Hope Little H is better soon. x

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  4. Well, I've found 5 minutes to check twitter and here and have a coffee - does that count as looking after yourself h0peful Mummy? Ha ha.

    Thanks for all your comments and kind wishes. He's doing OK. The set up here is a bit like HDU at the moment but if it's keeping him out of hospital I'm happy. Though I suspect I'm not getting paid enough for the double shifts! :D He does seem to be coming out the other side now though (we hope).

    And then we can resume our not-at-all-normal daily routine. Xx

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  5. Yeah - who wants to me normal anyway! Short & sweet but straight to the point - I loved it! Take care x

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