Accepting My Child Will Never Walk

I remember reading, a few years back, about someone with cancer feeling inadequate because they weren't running marathons or raising millions of pounds for charity. They were 'just', you know, getting on, turning up for chemo, hoping for the best. I've read too about people who've become depressed (understandably) as the cancer has taken hold; felt like giving up. But those aren't the stories that make the papers; people don't want to read about that. They want INSPIRATION. Defying the odds... That kind of thing. Not just ... Well you know ... The everyday kind of suffering.  
I wondered how it would feel to have cancer and read about the people running 26 miles when you're barely fit to get to the end of your bed. Do you think 'fair play', or do you feel guilty, or unworthy, or maybe that you're just not trying hard enough?
Mind over matter and all that!
Hugh's undiagnosed condition has left his muscles very floppy. He can't walk or si…

Happy Birthday Precious.


  1. happy happy birthday, little h.
    you have given your mamma so much more than she could ever have hoped for.
    hugs and kisses

  2. Happy Birthday Hugh!! What a lovely little poem. So true.
    Hope you all have a fab day, you definatly deserve it.
    Sending big birthday snuggles & kisses from me & your little friend Freddie xx

  3. Dear Little H

    My Mummy says that we are quite similar in some ways - especially as she says we are both gorgeous but a pair of heart breakers too.

    I hope you have a lovely birthday and get lots and lots of cuddles. They are much better than presents.

    My Mummy reads your Mummy's posts to my Dad and they boy say that they can hear how much she loves you (and Cheeky too of course) in every word.

    I hope we can meet one day & hang out.

    With love and cuddles, your friend Samuel. x

  4. Aw, and written more too! Happy Birthday, I hope it's an uneventful day for all the right reasons x

  5. Beautiful :) Happy Birthday little H x

  6. A belated Happy Birthday but sending lots of love all the same. xx

  7. Thank you all for the birthday messages. He had a lovely day, enjoyed all the cuddles and snuggles he got from family and friends and was well and truly spoilt rotten. xxx


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