The life I never expected

Way back... Way back when... Way back when I didn't know how disabled Hugh was or would be... Way back when I didn't realise how destructive his seizures were... Way back when I thought the doctors could fix things... I thought,  I thought that once we'd sorted the epilepsy everything would be better, I thought that once we'd sorted the epilepsy I'd have to struggle to come to terms with having a child that needed to go to special school.
I didn't expect to have to come to terms with having a child that would be unlikely to live past his teenage years.
I didn't expect to come to terms with having a son that hardly knew I existed.
I didn't expect that, even once the terrible times had past, the devastating consequences would remain.
Hugh's epilepsy has robbed him of a future. Hugh's epilepsy has robbed us of the child he might have been.
His really bad seizures are less often than they used to be, And for that I am grateful, But they cast a long shadow, And I ne…

Happy Birthday Precious.


  1. happy happy birthday, little h.
    you have given your mamma so much more than she could ever have hoped for.
    hugs and kisses

  2. Happy Birthday Hugh!! What a lovely little poem. So true.
    Hope you all have a fab day, you definatly deserve it.
    Sending big birthday snuggles & kisses from me & your little friend Freddie xx

  3. Dear Little H

    My Mummy says that we are quite similar in some ways - especially as she says we are both gorgeous but a pair of heart breakers too.

    I hope you have a lovely birthday and get lots and lots of cuddles. They are much better than presents.

    My Mummy reads your Mummy's posts to my Dad and they boy say that they can hear how much she loves you (and Cheeky too of course) in every word.

    I hope we can meet one day & hang out.

    With love and cuddles, your friend Samuel. x

  4. Aw, and written more too! Happy Birthday, I hope it's an uneventful day for all the right reasons x

  5. Beautiful :) Happy Birthday little H x

  6. A belated Happy Birthday but sending lots of love all the same. xx

  7. Thank you all for the birthday messages. He had a lovely day, enjoyed all the cuddles and snuggles he got from family and friends and was well and truly spoilt rotten. xxx


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