Here comes the sun!
It’s a glorious day here, the sun is shining,
the birds are singing, there’s that smell of spring in the air and I can hear
the Eager Beavers out with their lawn mowers already. It’s the kind of day that puts a smile on
your face. In Little Mamma’s house,
there is even more reason to smile.
Today is the day we start the Ketogenic diet. Today is a day filled with hope and endless
possibilities. It’s the start of our
exciting journey leaving the bitter winter of seizures behind; our chance to
escape from the clutches of epilepsy.
I don’t want to get my hopes up. We have been sorely disappointed so many
times in the past. But I can’t quite
control myself. Epilepsy has been the
big dark cloud in our lives for over a year now. Each seizure Little H has is potentially life
threatening and when they begin we have no idea if or how they will end. He doesn’t have hundreds of seizures a day,
like some poor children, but when he has them, he stops breathing, he turns
blue and within a short period of time his heart rate drops dangerously
low. We live in fear of his seizures;
they affect every aspect of our lives.
We turn down invitations to weddings for fear of them happening
there. We can’t get babysitters – who wants
to look after a child when there is every possibility that they will stop
breathing in your care? H’s seizures are
classed as ‘medically intractable’, that is to say that drugs won’t work for
him. After trialling a large number of
them we’ve been told there is only a 2% chance his epilepsy will ever be
controlled by medication.
Our lifeline then, our glimmer of hope, is
this – the Ketogenic diet. There’s a 50% chance they will have some effect on
his seizures – whether this be a reduction in frequency, severity or the Holy Grail
– a cure – remains to be seen. Imagine,
Little H – seizure free – oh how
different life would be!
So today feels like the start of something
special. A new beginning; Spring after a
long cold Winter. My heart is fit to
burst.
Please God let it work.
Little
darling, the smiles returning to the faces
Little darling, it
seems like years since it's been here
Here comes the sun
Here comes the sun,
and I say
It's all right
The Beatles, Here Comes the Sun.
the sun is shining here too. the crocuses are blooming and the daffodils are pushing through the earth. the day is full of the hope of the year - and i'm hopeful for you. fingers crossed it makes a difference; and if it doesn't make as much of a difference as you hope, if nothing else it will allow you to feel in control of something positive that you are doing for little h.
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Thinking of you and I hope that the diet works.You have nothing to lose by trying it. All my fingers and toes crossed!
ReplyDeleteThanks ever hopeful mummy & Di, ffi gets crossed it will work. I'll be keeping you all updated.
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