The life I never expected

Way back... Way back when... Way back when I didn't know how disabled Hugh was or would be... Way back when I didn't realise how destructive his seizures were... Way back when I thought the doctors could fix things... I thought,  I thought that once we'd sorted the epilepsy everything would be better, I thought that once we'd sorted the epilepsy I'd have to struggle to come to terms with having a child that needed to go to special school.
I didn't expect to have to come to terms with having a child that would be unlikely to live past his teenage years.
I didn't expect to come to terms with having a son that hardly knew I existed.
I didn't expect that, even once the terrible times had past, the devastating consequences would remain.
Hugh's epilepsy has robbed him of a future. Hugh's epilepsy has robbed us of the child he might have been.
His really bad seizures are less often than they used to be, And for that I am grateful, But they cast a long shadow, And I ne…

ABC of me ...



Grr - that little Minx Tricky Customer has tagged me or whatever it's called.  It's an ABC award where I describe myself using all the letters of the alphabet


Right - so here goes ...



A Big Chatterbox, Doesn’t Enjoy Figs, Gives (Great) Hugs, Is Jolly Kind, Loves My Numerous (2 – not sure if that really counts as numerous) Offspring, Polite-ish, Quite Regularly Stubborn, Thoughtful & Understanding, Very Wine-filled, eXtremely tired, Yawn. Zzzzzzz.

Phew!  Hard work!  


(sorry guys!!!) :D

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